I believe you’d be welcome at !neurodegdissupport@lemmy.world. I’m a co-mod. We’ve got Alzheimer’s, Huntington’s and MS represented among the active and vocal participants. Yes, I know epilepsy isn’t technically “degenerative,” but it is neurological.
Alzheimer’s, other forms of dementia, Parkinson’s, Huntington’s, multiple sclerosis, Amyotrophic lateral sclerosis (ALS or Lou Gehrig’s)… and similar concerns. We’re not all affected by every one of these, but we can make common cause and support each other.
“I also understand how that could be seen to go against the point of federated social media in the first place…”
Federating with Meta is different from federating with individuals. It’s like letting corporations be treated the same as natural persons for the purposes of voting in political elections and exercising other civic participation rights.
Natural persons may have a variety of motivations for federating. Corporations have only one: to increase profit.
And please don’t say “federate now, revisit later if needed.” Recall the fable about the scorpion and the rabbit facing a raging flood. Said the scorpion, “oh please, rabbit, let me ride on your back as you swim across.” Rabbit said “no, you’ll sting me and I’ll die.” Scorpion said “no I won’t; we’re both in danger; I have children at home; we both want to live.” Rabbit said “okay, if you promise not to sting me.” So scorpion climbed onto rabbit’s back, and halfway across the flood, scorpion gave rabbit a lethal sting. Rabbit asked why, and scorpion shrugged; “you knew what I was when you let me onto your back.”
Thank you; is there a way to get this to work on the Android Toob app?
Yeah; I could cut and paste the url into NewPipe. But links seem to default to the Toob, and if I just want to get a quick glimpse to see if the material is worth my time, I can’t be bothered.
Yes—and there seem to be more linked articles, compared to linked YouTube posts. I prefer to read, rather than wait through ads and a blah-blah-blah intro explaining why I should want the content about to be revealed by the loquacious host.
Reading is a highy efficient way of transmitting information. It feels like a giant step backward in cultural evolution to force information into an aural format with visual candy-coating as enticement.
You probably have food banks in your area which would be delighted to get some!
Oh gawd! We’re calling stuff from 2000s nostalgia!? LOL—Boomer here. Every time I see new decade connected to nostalgia content, I’m reminded of how old I’m getting.
Just about 10 years on Reddit. My visits to Reddit dropped by 99.9%; still do a few check-ins with support communities I’ve used. Here on Lemmy, actively contributing and minor role as mod in a couple of communities. Building a new home in the stars.